Stacy Webster
March 25, 2009 - July 10, 2009
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Shailee Jo Webster was born on March 25,
2009 at 5 pounds 7 ounces, and 19 inches long. She was almost one month early when
she was born, and she was taken early due to a very high heart rate. when she was
born she was immediatley taken to St. Vincent Mercy Children's Hospital in Toledo
Ohio. She was born with an omphalacele (intestines on the outside), a club foot,
a divot in the corner of her lip, 2 holes in her heart, and she couldn't swallow,
and her vocal chords were paralyzed. Shailee had to eat from a feeding tube, and
be on a ventilator because she was unable to breathe on her own. About a month after
she was born we found out that she had Cri-Du-Chat Syndrome and she had Mosaic Cri-Du-Chat
because she had a deletion of 5p and an addition which was an inverted duplication
on the short arm of 5p. They told us that there were no other cases like Shailee's
so there was no way to tell what was going to happen. Shailee had pneumonia 3 times
due to her not being able to swallow and she had a high amount of secretions and
that all went in her lungs which only weakened them more. They did a tracheotomy
with hopes that it would help her to be able to wean off the vent, and she did great
for the first few weeks. then she developed MSRA and her body couldn't take it and
she had been on antibiotics so much that her body no longer responded to them. Shailee
became oxygen dependent and there was nothing more that they could do for her other
then make her comfortable. Shailee passed away on July 10, 2009 at 3 1/2 months
old. But when she was with us she was such a blessing, and even though she went
through so much she was a happy baby. She fought long and hard, but God needed her
more than us. We think about and miss Shailee everyday, but she has brought so many
people together, and we have met so many wonderful people thanks to her. Shailee
being born was one of the greatest things, and she taught us so much in such a short
amount of time. Because of her and all the help we received from the community there
is now a Shailee Jo Webster fund, and we held our first of hopefully many to come,
Shailee Jo Webster Benefit Concerts last August. All the proceeds go to help other
families with children in neonatal units and some gets donated to other chromosome
deletion programs. Shailee was different in many ways, but she was loved just the
same as everyone else, and she will never be forgotten.
Stacy Webster |