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Our beautiful daughter Lillian Faye Staggs was born on December 08 2004. Lillian passed away on Feb. 06 2008. I would love to tell you about her and her story. Lillian has three brothers who adored, and loved her very much. Lillian was diagnosed with chromosomal 14q deletion on the 32.1 segment disorder in utero. She was born with cranial synostosis, hydrocephaly, and extreme low muscle tone. Lilly was trached and had a G-tube placed a little time after she was born. Though many doctors told us she might not survive being born, she fought hard and defied many odds. She did have a rough road for about 8mths but still she was the most lovable, happy baby ever. Lilly loved her baths. She splashed almost all the water out of her tub getting all of us wet, which she thought was very funny and so did we. Lillian’s favorite toy was a toy mobile that played a simple song that came to be our favorite tune. She loved to have her head rubbed and to be held by everyone. Her smile always succeeded in making even the darkest day brighter. She blew bubbles and talked around her trach sometimes. Lillian lived her life with every ounce of who she was. She knew nothing of sadness, fear, or limitations. She was the most exceptional child I have ever known. She was our hero, and changed us in ways we still haven’t fully been able to comprehend. She IS loved endlessly and lives on in our hearts forever.