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Education, Advocacy, Information & Support
For all those affected by a rare chromosome disorder.

Family Support & Sharing

Meet a few CDO families, read their stories and share in the joy, as well as the challenges, of raising a very special, unique child. "Jake is a wonderful kid. He is very tiny, and smiles a lot. He can roll across a room, and shrieks with delight, and thinks hats are funny." Continue...

After they’re born, many children with chromosomal abnormalities spend time in the NICU (Neo-natal Intensive Care Unit). Some babies require invasive intervention, while others may only be monitored for a short time. Read the experiences of several parents as they share how life can be with their newborns in the NICU. Continue...

This chapter is dedicated to providing support, comfort and consolation to parents who have suffered the loss of child affected by a rare chromosome disorder. We celebrate these children's gifts and contributions to making this world a better place. "Kaden Michael Tucker Born on earth and into heaven on September 23, 2004." Continue...

Share your thoughts with others through a post to our guestbook, or view some of the more than 400 pages of entries - "My 5 month old son has a 1(q44) deletion. This site has connected me with one other person with the exact same deletion." Continue...

Favorite inspirational writings, songs and poems submitted by CDO families. These pages have been moved to Yahoo Groups and are accessible by registered CDO members who have joined our listserv.