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Well Jordyn was born December 13 2006 3lbs beautiful healthy little boy or so I thought he was. The day he was born I was scared. Just made it in time to the hospital when they got me to a room and the nurse hooked me up to all the machines she thought the baby would be born hours later.
As soon as she left, he fell out. Yes, he fell out - the only people in the room were me, my mother-in-law and Jordyn, on the bed..not breathing. My mother-in-law called for a nurse. Then all these people came flying into the room. I didn't know what was going on. I didn't know he was on the bed. They got him to breath then took him to NICU at St Joseph Hospital.
I am scared becase they took my baby I didn't get to put my arms around him. I am crying and my mother-in-law said there is something wrong with his face.
Well meanwhile the docter never touched me - she was pulling out her hair trying to find out what had happend. She was asking questions they had some other doctor to come in because the after birth didn't come out so he had to deliver it.
My mother-in-law was outside on the phone with the red cross because my husband was in the army and we were trying to get him home when the doctor said to her "I so sorry i sould have said something". My mother in law looked at her crazy and said "what"? She said, "I knew he had a cleft lip I saw it on the ultrasound but she had a healthy boy before and she's young I thought he would grow out of it."
My son (Jordyn) was born with a bilateral cleft lip and palate. Sorry I don't have a med degree and I know that you can't grow out of anything like that. He has chromosome 7 deletion, cleft, IUGR growth retardation, the low birth weight 3 lbs. Thick wall muscle on his heart. Under developed penis, cataracts on both eyes, loss of hearing, piece of his brain missing and some other minor stuff.
I know half of this stuff you can see on the ulturasoud ( the low birth weight). I didn't know anything but that my son was healthy. Well Jordyn's doing ok now but every day is a fight. I had one son before Jordyn, age 3, Jordyn is now 18 mths and yes I had another baby a little girl 6 mth after. My son and my baby girl were born fine - nothing wrong. But Jordyn is a lot of work, he can't sit, or crawl right. He's on a feeding tube, he has had 7 diffrent surgeries. All different kinds of specialists, and therapists. He's still not growing right. 18 mths and my 6mth old daugter is bigger she's 15lbs and he's 14lbs. No one knows what's wrong with him. I wish I had some kind of help or someone who knows what could be wrong. I have three kids all under the age 4 and my husband being in the army is away again to Korea. Just me and GOD. Although everyday is a fight, I am blessed. If anyone has any knowledge or wants to talk email me.
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