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Sweet Sophie   Monosomy 7p, Trisomy 3p
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Last Updated: 3/13/2014
Sophie is now 7 years old. She is a beautiful, sweet little girl with an infectious laugh and almost constant smile. We are thankful for the many miracles we have seen in her life and the joy she adds to ours.

At 1 month old, Sophie had open heart surgery to correct a defect called Double Outlet, Right Ventricle. She then struggled with eating, reflux, growth and development. While at her own slower pace, Sophie learned to crawl, walk and play as most children do. At age 4, her feeding tube was removed, though she continued to prefer pediatric drinks to actual food. This year, an vertebral defect was found in her neck. Thankfully, her spinal cord was intact, though bruised and a spine fusion surgery and the placement of a halo brace corrected the problem.

Today Sophie is a happy child. We do not know what other challenges are in Sophie's future. We are hopeful that someday we will find a way for her to communicate with us. She understands much, but can say little. Her cognitive abilities are impaired, but she amazes us with her ongoing progress and joyous attitude. She runs and climbs, plays and pretends right along with her twin brother and older sister. She is a constant ray of sunshine in our lives and to those she meets.