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Education, Advocacy, Information & Support
For all those affected by a rare chromosome disorder.

Support Groups

Genetic Alliance

LEONA - German  Rare Chromosome Support

National Organization for Rare Disorders (NORD)

UNIQUE Rare Chromosome Support Group - England

Valentin APAC French Rare Chromosome Support Group


Chromosome 1 Chromosome 3 Chromosome 4 Chromosome 5 Chromosome 7 Chromosome 8 Chromosome 9 Chromosome 10 Chromosome 11 Chromosome 12 Chromosome 13 Chromosome 14 Chromosome 15 Chromosome 16 Chromosome 17 Chromosome 18 Chromosome 20 Chromosome 22 Sex Chromosomes Other Support Groups