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Education, Advocacy, Information & Support
For all those affected by a rare chromosome disorder.

Support Groups

Genetic Alliance

LEONA - German  Rare Chromosome Support

National Organization for Rare Disorders (NORD)

UNIQUE Rare Chromosome Support Group - England

Valentin APAC French Rare Chromosome Support Group


1p36 family network
www.1p36.com

Chromosome 3 Listserv
Chromosome 3 Listserv

Chromosome 3q Deletion Support
Chromosome 3 Registry

Wolf Hirschhorn Support Group
www.4p-supportgroup.org

Cri du Chat Support USA
www.fivepminus.org

Cri du Chat Syndrome - International Links
www.criduchat.com

Cri Du Chat Support Group of Australia Inc.
www.criduchat.asn.au

Cri du Chat Syndrome Support Group (Culcheth, England)
www.cridchat.u-net.com

Chromosome 7 Information
www.chr7.org/

Chromosome 9p- Network
www.9pminus.org

Chromosome 11 Deletion/WAGR Syndrome Support Group
www.wagr.org

Spanish Association of Aniridia
Spanish Association of Aniridia

10q information
home.comcast.net/~daryl59/10q/

European Chromosome 11q Network
www.11q.org

Chromosome 13 Support
www.chromosome13deletion.com/

Living with Trisomy 13
www.livingwithtrisomy13.org

Chromosome 17 Support
www.chromo17.com/

Chromosome 22 Central
www.c22c.org

Pallister Killian Mosaic Syndrome
www.pksonline.org

IDEAS:Inverted Duplication, Exchange, Advocacy & Support (Chromosome 15)
www.idic15.org

The Prader-Willi Syndrome Association (USA)
www.pwsausa.org

The Disorders of Chromosome 16 Foundation (DOC)
www.trisomy16.org

The Chromosome 18 Registry & Research Society
www.chromosome18.org

Trisomy 18 Foundation
www.trisomy18.org

The Ring Chromosome 20 Foundation
www.ring20.org

Chromosome 22 Information
www.chop.edu/index.html

Langer Giedion Syndrome Association
LGSA

Pierre Robin Network
www.pierrerobin.org

PRISMS: Parents & Researchers Interested in Smith Magenis Syndrome
www.prisms.org/start.htm

Support Organization for Trisomy 13 and 18
www.trisomy.org

S.O.F.T UK provides support for Patau's Syndrome (Trisomy 13), Edward's Syndrome (Trisomy 18), partial Trisomy, mosaicism, rings, translocation, deletion, and related disorders
www.soft.org.uk 

MASA/CRASH Syndrome
www.masainfo.de

47XXX Support Group
www.triplo-x.org

Tetrasomy/Pentasomy Support Group
www.tetrasomy.com
www.pentasomy.com

XYY Information
www.XYY.nl

XYY Information
www.aaa.dk/TURNER/ENGELSK/XYY.HTM

Klinefelter Syndrome & Associates 47, XXX and 47 XXY
www.genetic.org

The XXYY Project
www.xxyysyndrome.org

Williams Syndrome Association
www.williams-syndrome.org/welcome.html

Williams Syndrome Foundation
www.wsf.org